Golfers raise money for spinal muscular atrophy at the Aubrey Gr - 21 News Now, More Local News for Youngstown, Ohio -

LAKE MILTON, Ohio - Dannete Lyden and her husband Sean knew nothing about spinal muscular atrophy until it claimed the life of their daughter in 2011.

"We didn't have a whole lot of time between her diagnosis and when she passed away, but we spent every moment we could with her. We tried to learn about what was going on and how this disease happened and we just tried to get educated so that we could eventually help other people," Lyden said.

They got their shot on Sunday at the first ever Aubrey Grace Lyden Memorial Scramble. Despite the rain, the family is hoped to raise $10,000 and donate it to the Families of Spinal Muscular Atrophy or FSMA.

"We were totally overwhelmed. We were so excited everybody wanted to come out and help. We have so many people that have signed up for Chinese auction items, to sign up to golf and just donate money and support us and we're so excited we can do this," Lyden said.

Twenty-nine teams signed up to help raise money for the genetic disorder that causes muscle damage and eventually claimed the life of the nine-month-old Aubrey. Unbeknownst to the Lydens, both were carriers of the gene.

"Aubrey was a very special girl. She taught us a lot about life and about what we needed to do to help other people and I think that is why she was here to kind of push us to be able to do this and help others," Lyden said.

The Lydens are expecting their second child this winter. Doctors have confirmed the new addition does not have the disease.