Vienna boy has half his brain removed to control seizures - 21 News Now, More Local News for Youngstown, Ohio -

Vienna boy has half his brain removed to control seizures

Updated:

VIENNA, Ohio - A three-year-old boy from Vienna had half of his brain removed to control seizures.

When Nieko Julian was four-months-old he started having seizures that wouldn't stop. So at six months of age he underwent a dramatic surgery in which half of his brain was removed in the hopes of stopping the seizures.

Now, three years later Nieko Julian is just two months away from his fourth birthday and in those four years, this little guy has been through more than most of us will ever know.

"At one point, he was on four epileptic medications having over 100 seizures a day. It was nonstop, every few seconds he'd have a seizure," said Jennifer Julian, Nieko's mother.

After trying a cocktail of medications, Nieko's parents knew it was time to seek help and the Cleveland Clinic brought it in a way no one imagined.

Nieko had surgery that removed half of brain. "We did the operation when he was six-months-old. Removed the right side of his brain and thankfully he has been seizure free ever since," said Dr. William Bingaman from the Cleveland Clinic.

"There was no choice about it. It was just do it. It was a life of misery not being able to do anything. He wasn't meeting any of his goals as a baby that you look forward to, the milestones. He wasn't meeting any of them. He was constantly having seizures. You're constantly scared," Jennifer said.

The surgery was trying, but successful and Nieko has not had a seizure since.

He is in therapy now and the brain is re-training itself. He can never play contact sports, drive a car and while his left side of his body struggles; he's also deaf in his left ear and his vision is impaired, Nieko's family is grateful for the seemingly small moments of triumph.

"The whole right side of his body is super strong, way more strong that you can possibly imagine. His speech is still like a baby, maybe like a one and a half year old, but every day he learns a new word," Jennifer said.

"His language is developing nicely. His parents say he is more sociable," said Dr. Bingaman.

New words, new movements, new friends and a new life.

"I can see him laughing, you see him smiling, you see playing, you see him giggling. Totally different than what it would've been like because it was constant seizures every few minutes, constant seizures. So he's Nieko again," Jennifer said.

When asked if she would do it all over again, Jennifer replied, "Absolutely, in a heartbeat. This is best decision we ever made."

  • More From wfmj.comMore>>

  • Ocean crash kills teen pilot seeking world record

    Ocean crash kills teen pilot seeking world record

    Wednesday, July 23 2014 10:03 PM EDT2014-07-24 02:03:01 GMT
    A family spokeswoman says an Indiana teenager was killed when his plane crashed while trying to set a record for an around-the-world flight.More >>
    His pilot's license fresh in his hands, an Indiana teenager set out in June for the adventure of a lifetime: an around-the-world flight with his father designed to break a record and raise money to build schools in his...More >>
  • Ohio veteran cited for ducks hopes for law change

    Ohio veteran cited for ducks hopes for law change

    Wednesday, July 23 2014 9:56 PM EDT2014-07-24 01:56:55 GMT
    COSHOCTON, Ohio (AP) - An Army veteran who says his pet ducks help relieve his post-traumatic stress disorder is now hoping for a change in the Ohio village law that prohibits him from keeping the animals in his backyard. Darin Welker, who served in the Army National Guard, was cited for violating a ban on keeping farm animals in West Lafayette. The village is about 80 miles east of Columbus. Welker and his attorney said Wednesday that village officials are considering the possibility of a n...More >>
    COSHOCTON, Ohio (AP) - An Army veteran who says his pet ducks help relieve his post-traumatic stress disorder is now hoping for a change in the Ohio village law that prohibits him from keeping the animals in his backyard. Darin Welker, who served in the Army National Guard, was cited for violating a ban on keeping farm animals in West Lafayette. The village is about 80 miles east of Columbus. Welker and his attorney said Wednesday that village officials are considering the possibility of a n...More >>
  • More than 500 migrant children sent to Pa.

    More than 500 migrant children sent to Pa.

    Wednesday, July 23 2014 9:31 PM EDT2014-07-24 01:31:15 GMT
    HARRISBURG, Pa. (AP) - More than 500 migrant children are being housed in Pennsylvania as federal officials wrestle with a national crisis created by a flood of tens of thousands of unaccompanied minors across the southern U.S. border. State officials confirmed Wednesday that the federal government told them 120 children are in two temporary centers in Bethlehem and Womelsdorf, near Reading. Kait Gillis of the state Department of Public Welfare says the other 386 youngsters are staying with ...More >>
    HARRISBURG, Pa. (AP) - More than 500 migrant children are being housed in Pennsylvania as federal officials wrestle with a national crisis created by a flood of tens of thousands of unaccompanied minors across the southern U.S. border. State officials confirmed Wednesday that the federal government told them 120 children are in two temporary centers in Bethlehem and Womelsdorf, near Reading. Kait Gillis of the state Department of Public Welfare says the other 386 youngsters are staying with ...More >>
Powered by WorldNow
All content © Copyright 2000 - 2014 Worldnow and WFMJ. All Rights Reserved. For more information on this site, please read our Privacy Policy and Terms